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Children
with Fragile X Syndrome
Featured
Books in this Category / Main
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Featured
Books
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The Autistic Child’s Guide to How to Behave: Introducing spark*— the Self-Regulation Program of Awareness and Resilience in Kids. Heather Mackenzie, $39.95
THE AUTISTIC CHILD'S GUIDE TO HOW TO BEHAVE is an innovative
program for teaching self-regulation of behavior, thinking and emotions
to young children on the autism spectrum as well as other developmental
disabilities such as fetal alcohol and Fragile X. This book is for
teachers, speech-language therapists, occupational therapists, psychologists
and others interested in helping children optimize their abilities.
This child-centered program can be done in individual or group settings.
Based on well-researched theory and extensive clinical experience, the groundbreaking spark* program includes 69 step-by-step lessons for helping the child move from imitation of easy actions through to self-direction and self-control of behavior, thinking and emotions. spark* is a comprehensive, practical and systematic, covering details from pre-assessment through lesson implementation to evaluation of progress. It provides all information and resources needed to run the program successfully. spark* includes detailed lesson focus and goals, materials needed (many are included in the appendices along with reproducible forms), how to structure and introduce the lesson and then practice the skills as well as ways to prompt and solidify learning. Collaboration with families is encouraged throughout; 18 parent newsletters are included which describe what the child is working on and how the family can help support and extend his self-regulation skills. Certificates of completion for each of the three units, declaring “I have spark*”, are provided to help the children celebrate their accomplishments.
Unique features of spark*:
- Focuses on three important areas of self-regulation: behavioral, cognitive and emotional.
- Presents enjoyable activities that help each child progress from awareness of simple motor acts to cognitive and emotional self-regulation. Strategies learned in behavioral self-regulation serve as a foundation for other areas.
- Emphasizes developing resilience and self-advocacy skills in the children so that they can remain self-regulated even in stressful or disruptive situations.
- Explicitly teaches generalization of each self-regulation skill.
- Is based on current neurological research and works to enhance attention and executive functioning.
- Is suitable for preschool-aged children and/or those with lower language or cognitive levels.
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“Behaviour
Self!” Using Behavioural Concepts to Understand and Work with People
with Developmental Disabilities. Dave Hingsburger, $20.95
Disability activist, educator and trainer
Dave Hingsburger writes about the importance of understanding behaviour
messages from people with developmental disabilities. In his trademark
straightforward, compassionate and humorous style, this book gives
insight to parents and staff with new ways on how to get the message
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The Broken Toy:
the Story of a Fragile X Syndrome Child. Marilyn Morgan, $16.95
THE BROKEN TOY is an engrossing account of the trials
and triumphs of raising a special needs child, from infancy through
adulthood.
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Demystifying Syndromes: Clinical and Educational Implications
of Common Syndromes Associated with Persons with Intellectual Disabilities.
Dorothy M. Griffiths & Robert King, editors, $43.95
This book was developed to be
a practical summary of some of the common syndromes related to developmental
disability for professionals and students in the field. The editors
have selected common and some lesser known syndromes that are associated
with persons with developmental disabilities and coexisting mental
or behavioral challenges, specifically Fragile X, Down, Williams,
Smith-Magenis, Pervasive Developmental Disorders, Tourette Syndrome,
22q Deletion, Smith-Lemli-Opitz, and Angelman Syndrome. The objective
was to demonstrate how and why support and treatment can be individualized
by recognizing the differential realities of persons, with various
syndromes, who are all labeled as developmentally disabled. |
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Educating Children
with Fragile X Syndrome: a Multi-Professional View. Edited by
Denise Dew-Hughes, $63.50
Fragile X is the most common inherited
cause of learning difficulties, affecting a child's ability
to tackle key areas such as literacy and numeracy, and causing
behavior problems and social anxiety. This definitive text
will provide essential support and information for teachers
with the expertise of an international field of researchers,
whose variety of perspectives contribute to a unique, multi-professional
approach. Each chapter of the book suggests practical intervention
strategies, based on sound educational principles expressed
in clear non-specific terms. A range of important topics are
considered, including:
- the effects of Fragile X on learning
- the physical and behavioral characteristics
of Fragile X
- medication and therapy
- related conditions such as autism
and attention deficit disorder
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Friends
Learn About Tobin. Diane Murrell, $17.95 (ages 4-6)
Tobin’s friends are learning
to understand him as they come to accept and appreciate his
differences. |
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More Than Words®:
Promoting the Communication Development of Children with Autism
Spectrum Disorder and Other Social Communication Challenges, DVD.
The Hanen Centre, $55.00 DVD format (18 months to 5 years) 
This easy-to-use DVD is an invaluable tool for both
parents and professionals who support preschool children with social
and communication challenges, such as autism spectrum disorder.
A companion to Hanen’s popular MORE THAN WORDS guidebook, the DVD
brings to life the research-based strategies parents can use in
everyday activities to foster their children’s communication skills.
The book is also available: More Than Words:
Helping Parents Promote Communication and Social Skills in Children
with Autism Spectrum Disorder. Fern Sussman, $54.00 |
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Speech & Language Development in Down
Syndrome & Fragile X Syndrome. Joanne Roberts, Robin
Chapman $ Steven Warren, $43.50
Spotlighting two of the most
prevalent and most researched genetically based disabilities—Down
syndrome and Fragile X syndrome—this cutting-edge text clarifies
the distinct speech and language issues associated with each disorder
and helps readers conduct individualized assessment and intervention.
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Teachers
Ask About Sensory Integration. Stacey Szklut & Carol
Stock Kranowitz. CD format $22.50 (105 minutes)
This audio material offers practical advice for teachers and parents
on how sensory problems affect children’s learning and behavior,
as well as strategies and techniques for helping children affected
by a sensory processing disorder to actively participate in a healthy,
happy learning environment. |
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Understanding Fragile X Syndrome: a
Guide for Families and Professionals. Isabel
Fernändez Carvajal & David Aldridge, $22.95
Fragile X syndrome is one of the main
causes of child developmental delay and autism spectrum disorders. A pre-mutated
form of the same gene is also the basis for neurological disabilities in
adults. This book breaks down the complex science of this genetic disorder and
provides the facts and advice that every bewildered parent or professional
needs to support individuals with Fragile X syndrome.
This is a straightforward introduction
that clearly explains the condition on both a scientific and practical level.
With sections on diagnosis, symptoms and treatment, as well as discussions of
various emotional and behavioural considerations, this guide covers all aspects
of Fragile X syndrome, its implications, and the possibilities open to families
affected by it. It demonstrates how, with the right therapies, progress can be
made and emphasizes how music can be used effectively to promote communication,
interaction, fine motor skills and responsiveness in children with the condition.
This is an essential reference tool for
families of individuals with Fragile X syndrome, as well as therapists and
healthcare professionals who are unfamiliar with the condition and are looking
to find out more.
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Complete
Booklist
Resources for
Professionals
Behavioral Concerns & Autistic Spectrum
Disorders: Explanations and Strategies for Change. John Clements & Ewa
Zarkowska, $32.95
Demystifying Syndromes: Clinical and Educational
Implications of Common Syndromes Associated with Persons with Intellectual
Disabilities. Dorothy Griffiths & Robert King, editors, $43.95
Educating Children with Fragile X Syndrome: a Multi-Professional
View. Edited by Denise Dew-Hughes, $63.50
Fragile X Syndrome: Diagnosis, Biochemistry,
Intervention, 3rd Edition. Randi Hagerman et al (eds), $57.95
Handbook of Autism & Pervasive Developmental
Disorders Volume 1: Diagnosis, Development, Neurobiology and Behavior.
Donald Cohen &
Fred Volkmar (eds), $109.99
Handbook of Autism & Pervasive Developmental
Disorders Volume 21: Assessment, Intervention and Policy. Donald Cohen & Fred
Volkmar (eds), $109.99
Neurodevelopmental Disorders: Diagnosis and
Treatment. Randi Hagerman, $78.95
Reweaving the Autistic Tapestry: Autism, Asperger
Syndrome
& ADHD. Lisa Blakemore-Brown, $34.95
Speech & Language Development in Down Syndrome &
Fragile X Syndrome. Joanne Roberts, Robin Chapman $ Steven Warren, $43.50
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Resources
For Home, School & Community (*kids)
ADD Quick Tips: Practical Ways to Manage Attention
Deficit Disorder Successfully. C. Crutsinger & D. Moore, $46.00
The Autistic Child’s Guide to How to Behave: Introducing spark*— the Self-Regulation Program of Awareness and Resilience in Kids. Heather Mackenzie, $39.95
“Behaviour Self!” Using Behavioural
Concepts to Understand and Work with People with Developmental Disabilities.
Dave Hingsburger, $20.95
Biological Treatments for Autism and PDD, 3rd
Edition. William Shaw, $28.50
The Broken Toy: the Story of a Fragile X Syndrome Child.
Marilyn Morgan, $16.95
The Child with Special Needs: Encouraging
Intellectual &
Emotional Growth. S. Greenspan & S. Wieder, $39.50
Children with Autism: a Parent’s Guide,
2nd Edition. Michael Powers (ed), $26.95
Fragile X, Fragile Hope: Finding Joy in Parenting
a Special Needs Child. Elizabeth Griffin, $17.95
Fragile X Syndrome: a Guide for Teachers.
Suzanne Saunders, $34.95
*Friends Learn About Tobin. Diane Murrell, $17.95 (ages
4-6)
How Well Does Your I.E.P. Measure Up? Quality
Indicators for Effective Service Delivery. Diane Twachtman-Cullen & Jennifer
Twachtman-Reilly, $33.95
More than Words: Helping Parents Promote Communication
and Social Skills in Children with Autism Spectrum Disorder. Fern Sussman,
$54.00 (18 months to 5 years)
More than Words: Promoting the Communication Development
of Children with Autism Spectrum Disorder and Other Social Communication
Challenges, DVD. The Hanen Centre, $55.00 DVD format
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Parent Survival Manual: a Guide to Crisis Resolution in
Autism and Related Developmental Disorders. Eric Schopler (ed), $65.95
Solving Behavior Problems in Autism: Improving
Communication with Visual Strategies. Linda Hodgdon, $47.95
Spelling Love with an X: a Mother, a Son and
the Gene That Binds Them. Clare Dunsford, $21.95
Steps to Independence: Teaching Everyday Skills to Children
with Special Needs, 3rd Edition. Bruce Baker & Alan Brightman, $35.95
Teach Me Language: a Language Manual for Children
with Autism, Asperger's Syndrome and Related Developmental Disorders.
S. Freeman
& L. Dake, $79.95, Companion Exercise Forms, $26.95
Teaching Playskills to Children with Autism Spectrum Disorder:
a Practical Guide. Melinda J. Smith, $27.50
*Tobin Learns to Make Friends. Diane Murrel,
$18.95 (5-8)
Toilet Training for Individuals with Autism or Other Developmental
issues, 2nd Edition. Maria Wheeler, $20.95
Understanding Fragile X Syndrome: a
Guide for Families and Professionals. Isabel
Fernändez Carvajal & David Aldridge, $22.95
Visual Strategies for Improving Communication: Practical
Supports for School and Home, 2nd Edition. Linda Hodgdon, $44.95
*Views from Our Shoes: Growing Up with a Brother
or Sister with Special Needs. Donaly Meyer (ed), $19.95
The World of the Autistic Child: Understanding
and Treating Autistic Spectrum Disorders. Bryna Siegel, $20.95
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Sensory
& Motor Resources
Answers to Questions Teachers Ask about Sensory Integration:
Forms, Checklists and Practical Tools. Carol Kranowitz et al, $15.95
Brain Gym: Simple Activities for Whole Brain Learning.
Paul Dennison & Gail Dennison, $14.95
Brain Gym, Teacher’s Edition. Paul Dennison &
Gail Dennison, $34.50
Building Bridges through Sensory Integration: Occupational
Therapy for Children with Autism and other Pervasive Developmental
Disorders. Ellen Yack, Shirley Sutton & Paula Aquilla, $36.95
How Does Your Engine Run: a Leader’s Guide to the
Alert Program for Self-Regulation. Mary Sue Williams & Sherry Shellenberger,
$47.95, booklet $10.95
Making Sense of Art: Sensory-Based Art Activities for Children
with Autism (Ages 6-8), Asperger Syndrome and Other Pervasive Developmental
Disorders. Sandra Davalos, $30.95
The Out-of-Sync Child: Recognizing and Coping
with Sensory Integration Dysfunction. Carol Kranowitz, $17.50; DVD
$46.95 (85 minutes)
Physical Activities for Improving Children’s
Learning and Behavior: a Guide to Sensory Motor Development. Billye Ann
Cheatum & Allison Hammond, $28.95
Sensory Integration: Theory and Practice,
Second Edition. Anita Bundy et al, $59.50
Sensory Integration and the Child. Jean Ayres,
$25.95
Sensory Integration and Self-Regulation in Infants and
Toddlers: Helping Very Young Children Interact With Their Environment.
G. Gordon Williamson & Marie Anzalone, $24.95
Small Steps Forward: Using Games and Activities to Help
Your Pre-School Child with Special Needs. Sarah Newman, $24.95
Teachers Ask About Sensory Integration. Stacey
Szklut & Carol Stock Kranowitz, CD format $22.50 (105 minutes)
Twos Experience Sensory Play. Liz & Dick
Wilmes, $18.95
Unlocking the Mysteries of Sensory Dysfunction:
a Resource for Anyone Who Works With, or Lives With, a Child With Sensory
Issues. Elizabeth Anderson & Pauline Emmons, $22.95
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