Children with Fragile X Syndrome Booklist

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Children with Fragile X Syndrome

Featured Books in this Category / Main Booklist

Featured Books

“Behaviour Self!” Using Behavioural Concepts to Understand and Work with People with Developmental Disabilities. Dave Hingsburger, $20.95

Disability activist, educator and trainer Dave Hingsburger writes about the importance of understanding behaviour messages from people with developmental disabilities. In his trademark straightforward, compassionate and humorous style, this book gives insight to parents and staff with new ways on how to get the message right.

The Broken Toy: the Story of a Fragile X Syndrome Child. Marilyn Morgan, $20.95

The Broken Toy is an engrossing account of the trials and triumphs of raising a special needs child, from infancy through adulthood.

Demystifying Syndromes: Clinical and Educational Implications of Common Syndromes Associated with Persons with Intellectual Disabilities. Dorothy M. Griffiths & Robert King, editors, $43.95

This book was developed to be a practical summary of some of the common syndromes related to developmental disability for professionals and students in the field. The editors have selected common and some lesser known syndromes that are associated with persons with developmental disabilities and coexisting mental or behavioral challenges, specifically Fragile X, Down, Williams, Smith-Magenis, Pervasive Developmental Disorders, Tourette Syndrome, 22q Deletion, Smith-Lemli-Opitz, and Angelman Syndrome. The objective was to demonstrate how and why support and treatment can be individualized by recognizing the differential realities of persons, with various syndromes, who are all labeled as developmentally disabled.

Educating Children with Fragile X Syndrome: a Multi-Professional View. Edited by Denise Dew-Hughes, $80.95

Fragile X is the most common inherited cause of learning difficulties, affecting a child's ability to tackle key areas such as literacy and numeracy, and causing behavior problems and social anxiety. This definitive text will provide essential support and information for teachers with the expertise of an international field of researchers, whose variety of perspectives contribute to a unique, multi-professional approach. Each chapter of the book suggests practical intervention strategies, based on sound educational principles expressed in clear non-specific terms. A range of important topics are considered, including:

the effects of Fragile X on learning
the physical and behavioral characteristics of Fragile X
medication and therapy
related conditions such as autism and attention deficit disorder

Friends Learn About Tobin. Diane Murrell, $18.95 (ages 4-6)

Tobin’s friends are learning to understand him as they come to accept and appreciate his differences.

More Than Words® DVD: Promoting the Communication Development of Children with Autism Spectrum Disorder and Other Social Communication Challenges. The Hanen Centre, $55.00 DVD format (18 months to 5 years)

This easy-to-use DVD is an invaluable tool for both parents and professionals who support preschool children with social and communication challenges, such as autism spectrum disorder. A companion to Hanen’s popular More Than Words guidebook, the DVD brings to life the research-based strategies parents can use in everyday activities to foster their children’s communication skills.

The book is also available: More Than Words: Helping Parents Promote Communication and Social Skills in Children with Autism Spectrum Disorder. Fern Sussman, $53.00

Speech & Language Development in Down Syndrome & Fragile X Syndrome. Joanne Roberts, Robin Chapman $ Steven Warren, $51.95

Spotlighting two of the most prevalent and most researched genetically based disabilities—Down syndrome and Fragile X syndrome—this cutting-edge text clarifies the distinct speech and language issues associated with each disorder and helps readers conduct individualized assessment and intervention.

Teachers Ask About Sensory Integration. Stacey Szklut & Carol Stock Kranowitz. CD format $22.50 (105 minutes)

This audio material offers practical advice for teachers and parents on how sensory problems affect children’s learning and behavior, as well as strategies and techniques for helping children affected by a sensory processing disorder to actively participate in a healthy, happy learning environment.

Complete Booklist

Resources for Professionals

Behavioral Concerns & Autistic Spectrum Disorders: Explanations and Strategies for Change. John Clements & Ewa Zarkowska, $32.95

Demystifying Syndromes: Clinical and Educational Implications of Common Syndromes Associated with Persons with Intellectual Disabilities. Dorothy Griffiths & Robert King, editors, $43.95

Educating Children with Fragile X Syndrome: a Multi-Professional View. Edited by Denise Dew-Hughes, $80.95

Fragile X Syndrome: Diagnosis, Biochemistry, Intervention, 3rd Edition. Randi Hagerman et al (eds), $57.95

Handbook of Autism & Pervasive Developmental Disorders Volume 1: Diagnosis, Development, Neurobiology and Behavior. Donald Cohen & Fred Volkmar (eds), $109.99

Handbook of Autism & Pervasive Developmental Disorders Volume 21: Assessment, Intervention and Policy. Donald Cohen & Fred Volkmar (eds), $109.99

Neurodevelopmental Disorders: Diagnosis and Treatment. Randi Hagerman, $78.95

Reweaving the Autistic Tapestry: Autism, Asperger Syndrome & ADHD. Lisa Blakemore-Brown, $34.95

Speech & Language Development in Down Syndrome & Fragile X Syndrome. Joanne Roberts, Robin Chapman $ Steven Warren, $51.95

Resources For Home, School & Community (*kids)

ADD Quick Tips: Practical Ways to Manage Attention Deficit Disorder Successfully. C. Crutsinger & D. Moore, $46.00

“Behaviour Self!” Using Behavioural Concepts to Understand and Work with People with Developmental Disabilities. Dave Hingsburger, $20.95

Biological Treatments for Autism and PDD, 3rd Edition. William Shaw, $28.50

The Broken Toy: the Story of a Fragile X Syndrome Child. Marilyn Morgan, $20.95

The Child with Special Needs: Encouraging Intellectual & Emotional Growth. S. Greenspan & S. Wieder, $39.50

Children with Autism: a Parent’s Guide, 2nd Edition. Michael Powers (ed), $26.95

Fragile X, Fragile Hope: Finding Joy in Parenting a Special Needs Child. Elizabeth Griffin, $17.95

Fragile X Syndrome: a Guide for Teachers. Suzanne Saunders, $34.95

*Friends Learn About Tobin. Diane Murrell, $18.95 (ages 4-6)

How Well Does Your I.E.P. Measure Up? Quality Indicators for Effective Service Delivery. Diane Twachtman-Cullen & Jennifer Twachtman-Reilly, $33.95

I Openers: Parents Ask Questions about Sexuality & Children with Developmental Disabilities. Dave Hingsberger, $10.00

More than Words: Helping Parents Promote Communication and Social Skills in Children with Autism Spectrum Disorder. Fern Sussman, $53.00 (18 months to 5 years)

More than Words DVD: Promoting the Communication Development of Children with Autism Spectrum Disorder and Other Social Communication Challenges. The Hanen Centre, $55.00 DVD format

Parent Survival Manual: a Guide to Crisis Resolution in Autism and Related Developmental Disorders. Eric Schopler (ed), $63.50

Solving Behavior Problems in Autism: Improving Communication with Visual Strategies. Linda Hodgdon, $47.95

Spelling Love with an X: a Mother, a Son and the Gene That Binds Them. Clare Dunsford, $21.95

Steps to Independence: Teaching Everyday Skills to Children with Special Needs, 3rd Edition. Bruce Baker & Alan Brightman, $36.50

Teach Me Language: a Language Manual for Children with Autism, Asperger's Syndrome and Related Developmental Disorders. S. Freeman & L. Dake, $79.95, Companion Exercise Forms, $26.95

Teaching Playskills to Children with Autism Spectrum Disorder: a Practical Guide. Melinda J. Smith, $29.95

*Tobin Learns to Make Friends. Diane Murrel, $18.95 (5-8)

Toilet Training for Individuals with Autism & Related Disorders: a Comprehensive Guide for Parents & Teachers, 2nd Edition. Maria Wheeler, $21.95

Visual Strategies for Improving Communication: Volume 1, Practical Supports for School and Home. Linda Hodgdon, $47.95

*Views from Our Shoes: Growing Up with a Brother or Sister with Special Needs. Donaly Meyer (ed), $19.95

The World of the Autistic Child: Understanding and Treating Autistic Spectrum Disorders. Bryna Siegel, $20.95

Sensory & Motor Resources

Answers to Questions Teachers Ask about Sensory Integration: Forms, Checklists, and Practical Tools. Carol Kranowitz et al, $17.50

Brain Gym, Teacher’s Edition. Paul Dennison & Gail Dennison, $24.95

Building Bridges through Sensory Integration: Occupational Therapy for Children with Autism and other Pervasive Developmental Disorders. Ellen Yack, Shirley Sutton & Paula Aquilla, $35.95

How Does Your Engine Run: a Leader’s Guide to the Alert Program for Self-Regulation. Mary Sue Williams & Sherry Shellenberger, $49.95, booklet $12.95

I Am the Child: Using Brain Gym with Children Who Have Special Needs. Cecilia Freeman with Gail Dennison, $20.95

Making Sense of Art: Sensory-Based Art Activities for Children with Autism (Ages 6-8), Asperger Syndrome and Other Pervasive Developmental Disorders. Sandra Davalos, $30.95

The Out-of-Sync Child: Recognizing and Coping with Sensory Integration Dysfunction. Carol Kranowitz, $17.50; DVD $46.95 (85 minutes)

Physical Activities for Improving Children’s Learning and Behavior: a Guide to Sensory Motor Development. Billye Ann Cheatum & Allison Hammond, $28.95

Sensory Integration: Theory and Practice, Second Edition. Anita Bundy et al, $59.50

Sensory Integration and the Child. Jean Ayres, $25.95

Sensory Integration and Self-Regulation in Infants and Toddlers: Helping Very Young Children Interact With Their Environment. G. Gordon Williamson & Marie Anzalone, $29.50

Small Steps Forward: Using Games and Activities to Help Your Pre-School Child with Special Needs. Sarah Newman, $19.95

Teachers Ask About Sensory Integration. Stacey Szklut & Carol Stock Kranowitz, CD format $22.50 (105 minutes)

Twos Experience Sensory Play. Liz & Dick Wilmes, $18.95

Unlocking the Mysteries of Sensory Dysfunction: a Resource for Anyone Who Works With, or Lives With, a Child With Sensory Issues. Elizabeth Anderson & Pauline Emmons, $22.95

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